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Lives with Pain: Pain-Related Experiences of Ankylosing Spondylitis Patients   
Yazarlar (2)
Sevda Korkut
Türkiye
Prof. Dr. Ayla ÜNSAL Prof. Dr. Ayla ÜNSAL
Kırşehir Ahi Evran Üniversitesi, Türkiye
Devamını Göster
Özet
Background: One of the most serious and common problems experienced by patients with ankylosing spondylitis is pain. Pain is an important problem that negatively affects people's quality of life. Aim: This study was conducted to determine the experiences of patients with ankylosing spondylitis about pain shared on Facebook.Methods: In this study, qualitative phenomenological research design was used. The study was conducted through a comprehensive review of groups on Facebook that included patients with ankylosing spondylitis. Each comment with" pain",“ache” and “soreness” in the groups was included in the analysis.Results: A total of 1,152 posts containing this words were reached. After the analysis, three themes were formed:" seeking before diagnosis and helplessness"," the effect of pain on activities of daily living" and" factors that increase or decrease pain and methods used in pain management". Conclusions: The patients with ankylosing spondylitis shared various posts about the disease and its management from social media groups. The most common symptom experienced and asked by individuals is pain, and individuals are struggling to adapt to life with pain. Communicating with people who have had similar experiences could make individuals feel that they are not alone and can provide psychological relief. Moreover, it may create awareness in eliminating the factors that do not attract the attention of the individual and increase the severity of their pain. However, it is important to obtain expert opinions about the methods to be used to prevent complications.
Anahtar Kelimeler
Makale Türü Özgün Makale
Makale Alt Türü Diğer hakemli uluslarası dergilerde yayınlanan tam makale
Dergi Adı International Journal of Caring Sciences
Dergi ISSN 1792-037X
Dergi Tarandığı Indeksler DOAJ
Makale Dili İngilizce
Basım Tarihi 04-2025
Cilt No 18
Sayı 1
Sayfalar 97 / 109
Makale Linki https://www.internationaljournalofcaringsciences.org/
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